Day 7: I see pride, I see power…

So Ian had his last dose of chemo forever today! I can’t tell you how much I have looked forward to writing that sentence!

It was the big one today: Melphalan. I spoke yesterday about how this drug causes mucositis or ulcers on the mucous membranes (mouth, esophagus, and intestines). One of the ways to help or prevent some of this side effect is to chew ice. Ian was asked to continuously chew ice for 2.5 hours while he received the medication. This is actually harder than it sounds because eventually it starts to hurt. The other curve ball is that Melphalan is very nauseating. Ian got sick once but otherwise did well. He faithfully chewed his ice all the way through and we hope that his mouth ulcers will be minimal because of it.

One of the things Ian loves to tell the nurses is that he’s the “toughest patient they’ve got.” Most of the time he says it when the nurse is apologizing for something uncomfortable they are going to do. It’s his kind way of saying “it’s ok,” but it’s true. Ian is really really tough.

Today we had so many visitors, it was wonderful. It was so fun to watch Ian joking with his friends and talking about justice and politics. I knew I had a great husband, but he really is something special. While we were walking by, he busted into the aphoresis center (where they collect stem cells) and said hello to all the nurses who collected his stem cells. They of course remembered him. He ran into his radiation oncologist in the cafeteria and they talked for 20 minutes. Everywhere he goes he knows people or is meeting people. Ian is a force. Even in this transplant process his hope and love of life and people shows through and it is contagious.

Mr. T came and spent a good amount of time today. We don’t know exactly when, but probably soon Ian won’t be able to go downstairs to see tyler. That will be a very hard day. Today they played legos, threw Legos, danced, and played chase; all in the lobby at mayo. It was a hard goodbye. Tyler just didn’t want to let Ian go. He kept clinging to ian and saying “buh bye” to the rest of us. He cried a lot as Ian had to walk away. Shoot, we all wanted to cry too.

Tomorrow is a huge day. Huge. Ian will get transplanted with his stem cells at 11am. The hardest days are ahead of us but Ian is tough. In the words of cool runnings, kit, kris, and I decided that when we see him “we se pride, we see power, we see a badass father who won’t take no crap off of nobody!” (We also decided to sing and chant this to him a lot today and make him watch you tube clips we found from the movie) so for you all, I leave you with this video…

http://m.youtube.com/watch?v=7zFHkBQBg-4

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Last dose of chemo complete!!

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Snuggle bugs!

15 thoughts on “Day 7: I see pride, I see power…

  1. Shiloh, I am so sorry that you all are going through this. Ian sounds like an incredible man that is continuing to be a light in such a hard time. We are praying for Ian’s transplant and the days to follow. Thank you for keeping everyone updated on how we can be praying.

    All our love,
    Kyle and Lolly DiRoberts

    Liked by 1 person

  2. I SEE PRIDE! I SEE POWER! I SEE A BAD ASS FATHER WHO DOESN’T TAKE NO CRAP OFF OF NOBODY! It was great to spend time with you guys today, there is so much strength and life in that room. Congratulations on completing chemo what an absolutely amazing accomplishment. Love love love!

    Liked by 1 person

  3. Shiloh and Ian- I stumbled across the pic of Ian on the neighborhood website last week and we’ve been following your journey. You are both warriors and we’ve been praying for you. Justin works on 4west down the hall and hopes to come by next shift to say hey- he’s told everyone on his pod what a badass Ian is. I also pray specially for you because I imagine how hard it would be to play both roles as a mom and wife right now, desiring to be present for both. We are lifting you guys up and are trusting and believing in God’s healing favor and restorative power.

    Liked by 1 person

  4. Shiloh and Ian- I stumbled across Ian’s pic on the neighborhood website and we’ve been following your journey and praying daily. You are warriors. Justin works down the hall on 4west and is hoping to swing by next shift- he has told everyone on his pod what a badass Ian is. I also pray specially for you in your role as mom and wife– I can imagine how hard it
    would be to try to be present for both. We are trusting and believing in God’s healing and restorative power for you. He’s far from done with your story.

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  5. I can’t wait to see the “badass I kicked cancer” pajamas! Continued prayers for you. We sent a care package yesterday. Post office said it should be there tomorrow. If you don’t get it in the next few days, let me know.

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  6. Shiloh, you do have “a great husband, & he really is something special… Everywhere he goes he knows people or is meeting people. Ian is a force. Even in this transplant process his hope and love of life and people shows through and it is contagious…” Together, you two are no doubt the toughest patients they’ve got, a force, a joy!

    Like

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